Hi,
I just wanted to introduce myself. Everybody calls me Ladybug, but my real name is Jodi. I have been diagnosed with Essential Thrombocythemia in 2000. It is a rare bone marrow disorder, this disorder cause my individual blood cells to be out of range. It is a progressive disorder and I think that I have moved to the next stage. I will find out on friday when I see my Hem/Onc. Dr. Smith has been the only Hem/Onc I have seen, so no second opinion. I live in a very small community so I only have access to a few Doctors. I have a new problem associated with this its called Begnine Essential Tremors, it is very imbaressing when my hands shake so bad and people notice, they look at me as if I was a drugy. I am having a big problem with my self esteme. I dont feel that I am being supported at home. My husband lately has been telling me how I should be feeling, that I only think about death, that I am self diagnosing, that I spend to much time finding information about the disorder, and that I dont know basicly anything worth talking about, theres more but thats all I can talk about for now. I'll be 41 years in Dec. I think I have alot to offer people, I am very active in school (I went back to school once my current career had been black balled due to my health) I tutor, am a peer mentor, the editor of a newsletter, and Vice President of my club. I currently am inrolled and taking Trig, College Algebra, interpersonal communications, orientation to art, and an excersize class. I know this dosn't sound like alot but it is all that I can do at the time. Well thats all for now.